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Southern HIV and Alcohol Research Consortium

Florida Cohort Southern HIV and alcohol Research Consortium Administrative and Research Support Core

The goal of the Florida Cohort is to assess how individual, clinic, and community level factors influence healthcare accessibility and utilization and HIV clinical outcomes across the state of Florida. We seek to be representative of all people living with HIV in Florida and will also include some people who do not have HIV. The study will help identify barriers to care and treatment that could be changed by future interventions to improve the health outcomes of Floridians living with HIV and other chronic conditions.  We will work with the Florida Department of Health to continuously follow HIV viral load and CD4 counts from all persons enrolled in the cohort. The Cohort will also help build relationships between researchers from around the state.

This study has been carried out in four waves:

  • Wave 1 took place between 2012 and 2013
  • Wave 2 took place between 2014 and 2017  
  • Wave 3 took place between 2020 and 2023
  • Wave 4 began recruiting participants in June 2024

AIMS

Hypothesis

  • To create a Florida Cohort that will combine patient-reported outcomes and existing surveillance data, so that we can monitor and improve health outcomes for persons living with HIV.
  • To estimate the prevalence of substance abuse, common mental health conditions, and associated treatments within persons living with HIV in Florida.
  • To determine the associations of substance abuse and mental health issues with key HIV care outcomes, including engagement in HIV care and suppression of HIV viremia.
  • We hypothesize that substance abuse will be common in persons living with HIV, and that many persons with substance abuse will not receive treatment. Persons with mental health issues and substance abuse will have less engagement in care and less suppression of HIV.

Recruitment

Wave 2 enrolled 900 participants from Gainesville, Lake City, Tampa, Orlando, Miami, Sanford, and Ft. Lauderdale. Wave three recruited over 800 participants with a focus on mental health and substance use among people living with HIV in the state of Florida.

  • SHARC research happens at universities and in communities across the state of Florida.
  • To learn more about each project and your eligibility potential, take a look at the opportunities available in your area!

COMMUNITY RESOURCES

SHARC’s research happens across the state of Florida in Gainesville, Orlando, Tampa, Miami, and more. We believe access to resources is important for our communities and their health. For the Gainesville, Orlando, Tampa, Broward County, and Miami areas, we have created resources guides to support you.

human-resources-search-team Explore community resources

Wave 1 measures

Survey (people living with HIV)

  • Demographics
  • General health
  • Social support
  • HIV care and treatment
  • Healthcare services
  • Mental health
  • Cognition function
  • Pain
  • HIV stigma
  • Substance use
  • Sexual behavior
  • Use of digital technology 

Electronic Medical Record Abstraction

Survey (people not living with HIV)

  • Demographics
  • General health
  • Social support
  • Perceptions of HIV/AIDS
  • Healthcare services
  • Mental health
  • Cognition function
  • Pain
  • HIV stigma
  • Substance use
  • Sexual behavior
  • Use of digital technology 

eHARS

Wave 2 measures

Survey (people living with HIV)

  • Socio-demographics
  • General health
  • Social support
  • HIV care and treatment
  • Healthcare services
  • Mental health
  • Cognition function
  • Pain
  • HIV stigma
  • Substance use
  • Sexual behavior
  • Use of digital technology 

Survey (people living with HIV)

  • Socio-demographics
  • General health
  • Social support
  • Healthcare services
  • Mental health
  • Cognition function
  • Pain
  • HIV stigma
  • Substance use
  • Sexual behavior
  • Use of digital technology 

Wave 3 measures

Survey (people living with HIV)

  • Socio-demographics
  • Emotion/Mental Health
  • General Health
  • HIV care and treatment
  • Sexual Behavior
  • Women’s Health
  • Substance Use
  • Use of Technology
  • COVID-19
  • Others
  • Gender Identity
  • Disclosure
  • Access to medical care
  • Substance use and emotion
  • Gender-related discrimination
  • Reasons for drinking
  • Patterns of alcohol use
  • Alcohol related problems
  • Alcohol reduction
  • COVID-19 Testing and Prevention
  • COVID-10 Vaccination
  • COVID-19 Information and Attitudes
  • Impact of COVID-19
  • Alcohol use
  • Attitudes and beliefs
  • Discrimination
  • Experience with DIS
  • Pets experiences

Survey (people living without HIV)

  • Demographics
  • Emotion/Mental Health
  • General Health
  • HIV care and treatment
  • HIV Prevention
  • Sexual Behavior
  • Women’s Health
  • Substance Use
  • Use of Technology
  • COVID-19
  • Others
  • Gender Identity
  • Disclosure
  • Access to medical care
  • Substance use and emotion
  • Gender-related discrimination
  • Reasons for drinking
  • Patterns of alcohol use
  • Alcohol related problems
  • Alcohol reduction
  • COVID-19 Testing and Prevention
  • COVID-10 Vaccination
  • COVID-19 Information and Attitudes
  • Impact of COVID-19
  • Alcohol use
  • Attitudes and beliefs
  • Discrimination
  • Experience with DIS
  • Pets experiences

Relevant Publications

Our faculty, fellows, trainees, and students present at various conferences across Florida, the United States, and across the world. Below are the publications relevant to the Florida Cohort study:

Florida Cohort Wave 2

Sharpe JD, Zhou Z, Escobar-Viera CG, Morano JP, Lucero RJ, Ibañez GE, Hart M, Cook CL, Cook RL.   Interest in using mobile technology to help self-manage alcohol use among persons living with HIV: A Florida Cohort cross-sectional study.  Subst Abus. 2017 Jul 19:1-6. PMID:  28723300.

Dunne EM, Cook RL, Ennis NE.  Non-planning impulsivity but not behavioral impulsivity is associated with HIV medication non-adherence.AIDS Behav. 2019 May;23(5):1297-1305. PubMed PMID: 30264205.

Lucero RJ, Frimpong JA, Fehlberg EA, Bjarnadottir RI, Weaver MT, Cook C, Modave F, Rathoer MH, Morano JP, Ibanez G, Cook RL.  The relationship between individual characteristics and interest in using a mobile phone app for HIV self-management: Observational cohort study of people living with HIV.  JMIR Mhealth Uhealth. 2017 Jul 27;5(7). PMID 28751298.

Mannes Z, Hearn L, Zhou Z, Janelle J, Cook RL, Ennis N.  The association between symptoms of generalized anxiety disorder and appointment adherence, overnight hospitalization, and emergency department/urgent care visits among adults living with HIV enrolled in care.  J Behav Med. 2019 Apr;42(2):330-341. PubMed PMID: 30387009.

Wijayabahu AT, Zhou Z, Cook RL, Brumback B, Ennis N, Yaghjyan L.  Healthy behavioral choices and cancer screening in persons living with HIV/AIDS are different by sex and years since HIV diagnosis.  Cancer Causes Control. 2019 Mar;30(3):281-290. PMID: 30739240.

Mannes ZL, Burrell LE, Ferguson EG, Zhou Z, Lu H, Somboonwit C, Cook RL, Ennis N.  The association of therapeutic versus recreational marijuana use and antiretroviral adherence among adults living with HIV in Florida.  Patient Prefer Adherence. 2018 Jul 27;12:1363-1372. doi: 10.2147/PPA.S167826. eCollection 2018. PMID:  30100713. 

Mannes ZL, Ferguson EG, Burrell LE, Cook RL, Ennis N.  Brief report: The association between recreational versus therapeutic marijuana use on hazardous alcohol consumption and alcohol associated behavioral consequences among adults living with HIV in Florida. Harm Reduct J. 2018 Dec 7;15(1):61. PMID: 30526597.

Xu Y, Chen X, Zhou Z, Morano J, Cook RL. The interaction between detectable plasma viral load and increased body mass index on hypertension among persons living with HIV. AIDS Care. 2019 Sep 18:1-6. doi: 10.1080/09540121.2019.1668521.  [Epub ahead of print] PubMed PMID: 31530006.

Algarin AB, Zhou Z, Cook CL, Cook RL, Ibanez GE. Age, Sex, Race, Ethnicity, Sexual Orientation: Intersectionality of marginalized-group identities and enacted HIV-related stigma among people living with HIV in Florida. AIDS Behav. 2019 Nov;23(11):2992-3001.  PMID: 31392442.

Mannes ZL, Bryant V, Burrell LE, Zhou Z, Lu H, Fergusun EG, Cook RL, Ennis, N. The prevalence and patterns of substance use across age cohorts in HIV+ adults within the state of Florida. Aging Ment Health. 2019 Apr;23(4):515-523. PMID: 29436844. 

Cook RL, Zhou Z, Chichetto NK, Janelle J, Morano J, Somboonwit C, Carter W, Ibanez GE, Ennis N, Cook CL, Cohen RA, Brumback B, Bryant K. Alcohol consumption patterns and HIV viral suppression among persons receiving HIV care in Florida: an observational study.   Addiction Science and Clinical Practice 2017 12:22.

Ibañez GE, Zhou Z, Cook C, Slade TA, Somboonwit C, Morano J, Harman J, Bryant K, Ennis N, Brumback B, Algarin AB, Spencer EC, Cook RL.  The Florida Cohort Study: Methodology, initial findings and lessons learned from a multisite cohort of people living with HIV in Florida.  AIDS Care. 2020 Apr 3;1-9. PMCID: PMC7541483 

Algarin AB, Sheehan DM, Varas-Diaz N, Fennie KP, Zhou Z, Spencer EC, Cook RL, Morano JP, Ibañez GE.  Healthcare-specific enacted HIV-related stigma’s association with antiretroviral therapy adherence and viral suppression among people living with HIV (PWLH) in Florida.  AIDS Patient Care STDs.  2020 Jul;34(7):316-326.  PMCID: PMC7370977.

Xu Y, Chen X, Wijayabahu A, Zhou Z, Yu B, Spencer EC, Cook RL. Cumulative HIV viremia copy-years and hypertension in people living with HIV. Curr HIV Res. 2020;18(3):143-153.

Algarin AB, Sheehan DM, Varas-Diaz N, Fennie K, Zhou Z, Spencer EC, Cook CL, Cook RL, Ibañez GE.  Enacted HIV-related stigma’s association with anxiety & depression among people living with HIV (PLWH) in Florida. AIDS Behav. 2021 Jan;25(1):93-103.  2020 Jun 20. Online ahead of print. PMCID: PMC7749818.

Mannes ZL, Dunne EM, Ferguson EG, Cook RL, Ennis N. Symptoms of generalized anxiety disorder as a risk factor for substance use among adults living with HIV. 2020.  AIDS Care. 2021 May;33(5):623-632. PMCID: PMC7902737.

Joseph V, Jones A, Canidate S, Mannes Z, Lu H, Ennis N, Ibañez G, Somboonwit C, Cook RL.  Factors associated with current and severe pain among people living with HIV: Results from a statewide sample.  BMC Public Health. 2020 Sep 18;20(1):1424. PMCID: PMC7501653.

Richards VL, Berey BL, Lu H, Stetten NE, Fisk R , Wang Y, Brumback B, Cook RL.  Perceived positive consequences are associated with unhealthy alcohol use among persons living with HIV.  Can J Addict. 2020 Dec;11(4):23-31. PMID: 33748407; PMCID: PMC7968731.

Algarin AB, Zhou Z, Canidate S, Gebru NM, Krieger JL, Neil JM, Cook RL, Ibañez GE. PrEP awareness among people living with HIV in Florida: Florida Cohort study. AIDS Care. 2021 Apr;33(4):428-433. Epub 2020 Jan 21. PMID: 31960703; PMCID: PMC7371495.

Fisk RJ, Richards VL, Leeman RF, Brumback B, Cook C, Cook RL. Negative consequences of alcohol use among people living with HIV. Subst Use Misuse. 2021;56(6):871-878. Epub 2021 Mar 26. PMID: 33769201.

Ibañez GE, Zhou Z, Algarin AB, Ayala DV, Spencer EC, Somboonwit C, Teo GM, Cook RL. Incarceration History and HIV Care Among Individuals Living with HIV in Florida, 2014-2018. AIDS Behav. 2022, 25(10), 3137–3144. 2021 May 6. Epub ahead of print. PMID: 33959828.

O’Halloran Leach E, Lu H, Caballero J, Thomas JE, Spencer EC, Cook RL. Defining the optimal cut-point of self-reported ART adherence to achieve viral suppression in the era of contemporary HIV therapy: a cross-sectional study. AIDS Res Ther. 2021 Jun 26;18(1):36. PMID: 34174904

Kamara, MTB, Richards V, Somboonwit C, Park H, Seneadza N, Zhou Z, Jayaweera D, Thomas E, Cook RL.  Self-reported hepatitis C(HCV) testing among people living with human immunodeficiency virus (PLWH).  Heliyon, 2021.  Aug 6;7(8):e07727. PMID: 34409188; PMCID: PMC8361055.

Liu Y, Richards VL, Gebur NM, Spencer EC, Cook RL. Associations amongst form of cocaine used (powder vs crack vs both) and HIV-related outcomes. Addict Behav Rep. 2021 Sep 4; 14:100374. PMID: 34938835; PMCID: PMC8664776.

Bryant VE, Fieo RA, Fiore AJ, Richards VL, Porges EC, Williams R, Lu H, Zhou Z, Cook RL. Subjective cognitive complaints: Predictors and health outcomes in people living with HIV. AIDS Behav. 2021 Sep 22. Epub ahead of print. PMID: 34550502.

Richards VL, Leeman RF, Wang Y, Cook C, Prins C, Ennis N, Spencer EC, Cook RL. Identifying the best measures of alcohol consumption to predict future HIV viral suppression trajectories. AIDS and Behavior, 26(10), 3242–3253. Published online April 5, 2022.

Ahmed S, Algarin AB, Thadar H, Zhou Z, Taskin T, Vaddiparti K, Villalba K, Wang Y, Ennis N, Morano JP, Somboonwit C, Cook RL, Ibañez GE. Comorbidities among persons living with HIV (PLWH) in Florida: a network analysis [published online ahead of print, 2022 Feb 16]. AIDS Care. 2022;1-9.

Seneadza NAH, Kwara A, Lauzardo M, Prins C, Zhou Z, Séraphin MN, Ennis N, Morano JP, Brumback B, Cook RL. Assessing risk factors for latent and active tuberculosis among persons living with HIV in Florida: A comparison of self-reports and medical records. PLoS One. 2022 Aug 4;17(8):e0271917.  PMCID: PMC9352085

Deaterly CD, Varma DS, Li Y, Manavalan P, Cook RL. Mental health, substance use, and risky sexual behaviors among women living with HIV. J Nurs Scholarsh. 2023 May;55(3):751-760. doi: 10.1111/jnu.12900. Epub 2023 Apr 20. PMID: 37132071.

Manavalan P, Li Y, Mills JC, Kwara A, Zhou Z, Ritter AS, Spencer E, Pence BW, Cook RL. Depression and anxiety symptoms and treatment utilization, and associated HIV Outcomes among adults with HIV in rural Florida. AIDS Behav. 2023 Aug 11. doi: 10.1007/s10461-023-04147-4. Epub ahead of print. PMID: 37566153.

Florida Cohort Wave 3

Fisk-Hoffman RJ, Parisi CE, Siuluta N, Ding DD, Widmeyer M, Somboonwit C, Cook RL. Antiretroviral therapy concealment behaviors and their association with antiretroviral therapy adherence among people with HIV: Findings from the Florida Cohort Study. AIDS Behav. 2023 Oct 20. doi: 10.1007/s10461-023-04214-w. Epub ahead of print. PMID: 37861924.

Applebaum JW, McDonald SE, Porges EC, Widmeyer M, Fabelo HE, Kertes DA, Cook RL. Pet ownership is associated with harmful alcohol use among a cohort of people with HIV: a brief research report. Front Psychiatry. 2023 Oct 16;14:1258850. doi: 10.3389/fpsyt.2023.1258850. PMID: 37908599; PMCID: PMC10613728.

Applebaum JW, McDonald SE, Widmeyer M, Fabelo HE, Cook RL. The impact of pet ownership on healthcare access and utilization among people with HIV. PLoS One. 2023 Nov 1;18(11):e0292658. doi: 10.1371/journal.pone.0292658. PMID: 37910449; PMCID: PMC10619778.

Deaterly C, Richards V, Weaver M, Villalba K, Varma D, Payton I, Cook R. Associations of Intimate Partner Violence and Drug Use on Viral Suppression Among Women Living With HIV in South Florida: A Secondary Analysis. J Assoc Nurses AIDS Care. 2024 May-Jun 01;35(3):245-251. doi: 10.1097/JNC.0000000000000439. Epub 2024 Feb 28. PMID: 38417080; PMCID: PMC11216898.

Parisi CD, Siuluta ND, Canidate SS, Cook RL, Wang Y, Widmeyer M, Somboonwit C, Devieux JG, Chichetto N. Reasons for not seeking alcohol treatment among a sample of Florida adults with HIV who perceived the need for treatment. Addict Sci Clin Pract. 2024 Oct 4;19(1):71. doi; 10.1186/s13722-024-00491-5. PMID: 38367510; PMCID: PMC11452928.

Fisk-Hoffman RJ, Liu Y, Somboonwit C, Widmeyer M, Canidate S, Prosperi M, Cook RL. Who wants long-Acting injectable antiretroviral therapy? Treatment preferences among adults with HIV in Florida. AIDS Care. 2024 Nov;36(11):1545-1554. doi: 10.1080/09540121.2024.2383872. Epub 2024 Aug 1. PMID: 39088731; PMCID: PMC11511631.

 
See all SHARC Publications

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Current and Completed Florida Cohort Concepts

Relevant Presentations

Sharing our research findings and correlations via publications is key to improving health outcomes and understanding what factors impact health with HIV and alcohol. Below are the presentations relevant to the Florida Cohort study:

Ayala DV, Ibanez GE, Cook RL, Cook C, See J, Morano J, Zhou Z. Linkage to Care and HIV-Positive Individuals with an Incarceration History: The Florida Cohort Study. Abstract. Poster. 2016 Annual SHARC Conference. Miami, FL. May 17-18, 2016.

Dunee EM, Mannes Z, Zhi Z, Cook RL, Ennis NE. Depression and prescription opioid misuse among people living with HIV: The moderating role of impulsivity. Collaborative Perspective on Addition (CPA) April 2019. 

Wijayabahu, A., Zhi, Z., Cook, RL, Yaghjyan, L. Cancer screening practices and healthy behavioral choices of people living with HIV/AIDS are different by biological gender and years since HIV diagnosis. UFHCC Research Day 2017. Gainesville, Florida, November 16th, 2017. Poster.